Nicolette set to run in Frenchay 10k for Brandon Trust
Published on: 31 Mar 2014
A DOWNEND mum has chosen to run the Frenchay 10k in aid of Bristol charity Brandon Trust after drawing on her own experiences of caring for a child with profound and multiple learning disabilities.
Nicolette Usher’s 13-year-old stepson Callum will always require 24-hour care. He has septo-optic dysplasia, is registered blind with little vision and has no speech.
He has autistic tendencies with a number of behavioural issues and is now attending a full-time residential school in Bristol.
Nicolette, of Woodhall Close, who works as a project manager for an insurance company in Bristol, said: “When Callum came to live with us, we were given so little information about what help and support we could get for him, so for the past five years everything we’ve done, we’ve had to find out ourselves. No-one gives you a disabled child manual and we didn't even know that we would have options on his living arrangements. At the moment, Callum is in education, but when he turns 18, my husband and I will have to make a decision about his long-term future and care.
“Knowing that we, and other families like us, can call on the help and support of Brandon Trust, will make that decision just a little easier. It’s about helping other families like mine who don't know they can get support or where to go to get help and advice in these very difficult matters.”
The 38-year-old has joined a running club ahead of the road race on April 13 and is keen to do her best despite it being her first ever attempt at the distance. Her target is to raise £300 for Brandon Trust, which support people with learning disabilities across Bristol and South Gloucestershire through a variety of services.
Nicolette said: “It’s important to raise awareness that there are charities like Brandon Trust out there that can help families with children with disabilities.
“I admire Brandon Trust because they give disabled people a chance to be active in the community. Everyone has the right to a life and anything I can do to help raise awareness of the charity’s work is good.”
Brandon Trust is a chosen charity for this year’s Frenchay 10k and is keen to recruit more runners or marshals for the event. To find out more, visit www.brandontrust.org/frenchay-10k.aspx.
To sponsor Nicolette, go to www.justgiving.com/Nicolette-Usher